From Medical Advisor to Fundraiser: A Mom and Know Rare Team Member Helps the Hospital that Helped Her

Know Rare team members Liz Kay (Business Development and Partnerships), Laura Will (Medical Advisor), and Kelly Pesek (Study Center Support Manager) at the Storybook Ball (pictured left to right).

Know Rare’s Medical Advisor Laura Will served as Co-Chair of Mass General for Children’s Storybook Ball. Under her leadership, the Boston gala raised over $1.9m dollars of unrestricted funds that helps fuel research, holistic care, and other cutting-edge initiatives at this prestigious Boston hospital. MGfC is renowned for its innovation and patient-centered approach.

Laura Will, KnowRare Medical Advisor, and Dr. Will Curry, Chief Medical Officer of Massachusetts General Hospital.

For Know Rare, Laura serves as Medical Advisor and writer, bringing her own personal story of her son Alden, who was born with a genetic neurological disorder. You can learn more about Alden on Rare Resiliency, Laura’s column for Know Rare, as well as on her website.

Know Rare connects people living with rare diseases to information about their conditions as well as to specialists, clinical studies, advocacy organizations, and more. Know Rare improves access to the latest rare disease research through information from experts, providers, and sponsors to help to demystify the process for people considering participating in a clinical trial.

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