The MOG Project
OUR MISSION
The MOG Project is devoted to raising awareness about MOG Antibody Disease (MOGAD), as well as educating doctors, patients, and caregivers and also advancing research through expert collaboration and fundraising for our Research for Rare program. We provide support for the MOGAD community through their many resources and connections with others in the MOGAD Community. The MOG Project offers a variety of support groups for the MOGAD Community as well as several private Facebook support groups such as MOG Antibody / Anti MOG Support and Info, Adults with MOG Antibody Disease (MOGAD) Zoom Support Group, and Support for Parents and Caregivers of Kids with MOGAD.
OUR STORY
The idea of The MOG Project was born in 2017 when Executive Director and Co-founder Julia Lefelar was diagnosed with MOG Antibody Disease (MOGAD) and discovered a significant lack of information to understand and come to terms on her future. Julia had suffered for many years with undiagnosed symptoms of MOGAD, but her most acute, repeated attacks of Optic Neuritis started in 2014. At that time, MOGAD was barely on the map and there was little information with questionable accuracy for patients, doctors or caregivers on the disease symptoms, diagnosis, prognosis, and treatment options. The MOG Project was formally kicked off in December of 2017 when Julia, her daughter, Kristina Lefelar, Amy Ednie and another patient made a commitment to not let other patients go through similar feelings of hopelessness caused by lack of awareness and information. This small team found others with similar stories who were also willing to join the effort and The MOG Squad was born!
Since then, The MOG Project has expanded globally and provides a place where patients, caregivers and medical professionals can get the most up-to-date educational information and connect to others in the MOGAD Community. Through fundraising, The MOG Project has been able to advance research through expert collaboration with renown experts, provide patient perspectives to research through patient surveys, make aware and garner participation in clinical studies as well as provide research grants through the Research for Rare program. Also the MOGAD community now has many vetted resources available, social media presence on all major platforms for news and events, as well as a support network through the various MOGAD community connections offered. The support network includes a variety of support groups for the MOGAD Community as well as several private Facebook support groups such as MOG Antibody / Anti MOG Support and Info, Adults with MOG Antibody Disease (MOGAD) Zoom Support Group, and Support for Parents and Caregivers of Kids with MOGAD.
TO LEARN MORE
Get essential information on MOGAD here, and find answers to frequently asked questions about MOGAD here.
Visit The MOG Project’s website for:
More information on management of the disease
Surveys aimed at collecting data on patient experience
Information on clinical trials
Information and resources related to research and grants
Ways to connect to the MOGAD community
Gear and merch that can help to support our cause
More information on our team, the MOG Squad, and our Medical and Scientific Advisory Council
Get in touch with The MOG Project by emailing info@mogproject.org.
