May Is Myositis Awareness Month
Why now’s the time to amplify the voices of people living with this rare muscle condition.
This May, Know Rare is shining a light on myositis, a group of rare autoimmune muscle diseases that can have profound effects on daily life. This is an important time for the myositis community and the rare disease community at large: a time to share stories from those living with the condition, to learn more information about the current state and future of the disease, and to advocate for better treatments that will ultimately enhance the quality of life for those impacted by it. Whether you're a patient, caregiver, or advocate, join us in raising awareness and supporting those affected by myositis.
What is myositis?
Myositis is a condition characterized by chronic inflammation where the immune system mistakenly attacks muscles, leading to muscle weakness and pain. This disease falls under the umbrella term myopathy, which encompasses conditions affecting skeletal muscles.
Myositis can affect various muscle groups, including those in the arms, shoulders, legs, hips, abdomen, and spine. While the exact cause remains unknown, treatment focuses on managing symptoms and may include exercises to strengthen muscles.
Common types of myositis include polymyositis, dermatomyositis, and inclusion body myositis, and it can impact individuals of all ages. Symptoms can range from muscle weakness and fatigue to skin rashes and difficulty swallowing.
Why Myositis Awareness Month deserves our attention
Myositis Awareness Month is an opportunity to deepen our understanding of myositis, stand in solidarity with those impacted by the condition, and advocate for improved outcomes and quality of life for individuals living with it. Let's come together to make a meaningful impact in the lives of the myositis community.
Keep an eye on Know Rare’s blog and social media feeds for more information and stories about myositis this May.
