Skip to content
knowrare
A mother in a pink hoodie sharing a playful moment with her young daughter

Understand rare together

Get more information about your condition, connect with others and explore new research.

Ask Anything

Powered by HealthSpark, our AI chat helper
A rare community of 1M+ families & caregivers

Find understanding, support and new possibilities.

HealthSignal

Find your condition community

Explore information about your condition, hear from others and stay connected to community and research updates.

HealthSignal community

Understanding ITP

ITP lowers your platelet count. Platelets help your blood clot and stop bleeding.

Your immune system may destroy platelets, and your body may make fewer. ITP can be short term or last a year or longer.

Signs & symptoms Some people have no symptoms.
Easy bruising or tiny red spotsNosebleeds or bleeding gumsHeavy menstrual bleedingBlood in urine or stool

Source: NHLBI / NIH

Explore research for ITP
Phase 3RecruitingA Study to Assess the Efficacy and Safety of Efgartigimod IV in Adult Participants With Primary Immune Thrombocytopenia
Phase 3RecruitingA Study of Mezagitamab in Adults With Chronic Primary Immune Thrombocytopenia

HealthSpark sorts studies by phase, then by the nearest research center.

Visit the ITP community
HealthSpark

Explore new research for your condition

HealthSpark helps you find relevant studies and understand your next steps. For studies we support, our nurse team can help you learn more.

Research for your condition

Eligibility is confirmed by the study team.

HealthStory

Create a living journal that talks back

HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your experiences more deeply and prepare for better conversations with your doctors and care team.

Private by default. Journal entries never become blog posts or community posts.

KnowRare's founders, a grandmother and uncle, smiling together
About KnowRare

It started with our family

When a child in our family developed an unknown illness, we faced the same questions so many rare families do: What is happening? Who can help? What comes next?

As the grandmother and uncle, we brought together our experience in healthcare and technology to create KnowRare—a place to find information, connection and new possibilities.

Built from personal experience. Here for yours.

Trust & Transparency

Your trust comes first.

Know Rare is built on privacy, transparency, and a simple promise: you're always in control of what you share.

  • Your privacy matters

    Nothing is shared without your consent. You're in control of what you share.

  • Free, with transparency

    Made possible by life sciences partners advancing rare disease research and care.

  • Security you can trust

    ISO 27001 certified, the international standard for information security.

    View our certificate
    ISO/IEC 27001:2022

    Certificate of Registration

    Know Healthtech Inc. operates an Information Security Management System certified to ISO/IEC 27001:2022 by Insight Assurance (certificate IS-IA-2026-03-03-06, valid through March 2, 2029). Independent auditors regularly review how we protect your information.

    Certificate of Registration, page 1: Know Healthtech Inc, ISO/IEC 27001:2022, issued by Insight AssuranceCertificate of Registration, page 2: site 561 Norman Way, Woodmere, NY; activities HR, Finance, IT, Account Management, Patient Recruitment
  • Cookies with a purpose

    Cookies help us improve your experience and reach others living with rare disease.

In their words

Families we've helped

  • I cannot fail to thank them for the support they gave us. It was Know Rare that made the connection that brought us here and changed my daughter's life for the better.

    Caregiver of a Rare Disease Child
  • After my son's diagnosis, I had so many questions and didn't know where to turn to for answers... Know Rare provided incredible support by connecting us to the right specialists and local clinical trials.

    Caregiver of a Rare Disease Child
Find your
condition community
Find Now
Share your
experience with others
Share Now
Journal your
experience privately
Journal Now
Contact us

We'd love to hear from you

Questions, feedback or partnership ideas? Send us a note and the Know Rare team will get back to you.

Looking for a study or support for your condition? Ask HealthSpark

Please don't include medical details. For medical questions, talk with your care team. Privacy policy