Connect with Members of the Know Rare Team

Whether you’re a patient, family member, or medical pro, Know Rare has a place for you. Every story and every insight is a testament to our shared mission: understanding, supporting, and providing resources for rare diseases together.

In this recap of our first live Know Rare Connect event, we meet some incredible members of the Know Rare team and hear their stories. From founder Nina Wachsman’s visionary journey to Rare Ally Laura Will’s dual perspective as a Rare Mom & NP, we dived deep into the essence of community and resilience. Patient Support and Recruitment Manager Vera George enlightened us on the intricate world of patient support and neurology research. Post event, we shared inspiring personal stories – Rare Ally Tali’s journey with her daughter Sarena, Rare Ally Johnathan’s experience with a rare kidney condition, and many more – each serving as a powerful testament to the rare warriors behind every diagnosis.

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Visit Know Rare on Facebook for updates on Know Rare Connect live events.

Diagnosed with a rare disease? You can connect to Know Rare at any time by emailing support@knowrare.com.