Journalist Lindsay Guentzel describes navigating a diagnostic odyssey and how she manages day-to-day life with myositis in an impactful webinar.
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Rare mom Samantha Deschenes gives us an unfiltered look into life as a parent to a child with refractory seizures.
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Join Know Rare in a heartfelt exploration of the profound impact of journaling on the lives of those touched by rare diseases. In the “Know Rare Connect: Journaling Your Journey” webinar.
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In this recap of our first live Know Rare Connect event, we meet some incredible members of the Know Rare team and hear their stories.
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