Rare Resiliency Featured Pregnant After Rare: Week 30 Refractory Epilepsy: Reflections and Insights from Parents and Clinicians The Power of Palliative Care The Language of Rare A Certified Caregiving Consultant’s Reflections on Journaling Time Travel in the MRI Suite: A Journal Entry I Choose Rare But Mama, Why? Navigating 'Failure to Thrive': A Mother's Journey Through Diagnosis and Decision-Making Supporting Healthy Siblings of Children with Medical Complexities: A Mother's Perspective "I See You, Dragon Mom": A Poetic Tribute to Rare Disease Caregivers Strive to Thrive, Not Just Survive The Rare Resiliency Toolbox A Case for More Laughter: Humor as a Part of Seriously Good Caretaking Navigating Family Planning After a Child's Rare Disease Diagnosis Gaining Control with Gratitude Unleashing the Power of Self-Compassion: A New Year’s Resolution to Suffer Less Learning to Juggle it All as a Caregiver: The Four States of the Caregiver's Identity Cultivating Flexible Hope: A look at the emotional cycles in chronic illness Introducing Rare Resiliency: A column for parents of children with rare, serious, or chronic illness
