If you are coming across high copays and struggling to afford your treatment plan, here are a few options that may help you reduce the costs of your medications.
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How physical activity impacts this rare condition—and why you need to know about it.
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All about Congenital Myasthenic Syndromes at a glance
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Get essential information about congenital myasthenic syndromes (CMS) and why clinical trials are a crucial element in the path towards better treatment for the condition.
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Get the basics on needle anxiety, one of the top medical fears among children, and discover tips to manage it.
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On World Oral Health Day (March 20), we’re taking a closer look at what your oral health can tell you about your well-being.
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As we step into Rare Disease Month this February, it's an opportune time to celebrate resilience, foster connection, and empower ourselves within the rare disease community.
Read MoreAn expert on adolescent health shares tips for families navigating substance use concerns alongside rare disease.
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It’s National Influenza Vaccination Week: find out why the flu vaccine should be a critical part of your winter to-do list.
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Special diets can be a challenging but necessary part of rare disease treatment. Here, a leading dietician offers advice for supporting nutrition from birth through adulthood.
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