The Global Rare Disease Support Network

Know Rare provides access to support, tools, and knowledge from the top leaders and researchers in rare disease.

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About Our Support Network

Helping connect the people, researchers and communities in rare disease

+25,000

Rare Disease Members

+300

Medical Centers Worldwide

50+

Patient Organizations

How We Help

We connect people with rare disease to apps, research, and information that can improve their lives

Rare Journaling App

Our new ‘Healthstory AI’ app helps you journal and see insights on daily life.

Rare Disease Blog

Learn and get resources from experts, caregivers, and others like you.

Rare Research Finder

Get help finding & connecting with rare disease clinical trials & medical centers.

Download the Ultimate Rare Journaling App

Introducing Health Story AI, an app thats personalized to you, making it easier than ever to capture and share each persons unique daily challenges of living with a rare disease.


Journal with Voice

Just talk and we’ll automatically turns what you say into text, letting you easily read your journal entries anytime

View Insights

Get personalized easy-to-read insights based on the patterns, trends, and themes in your various journal entries

Share Securely

Feel confident about sharing your journal with family, friends, and more, utilizing our advanced privacy controls

Download now to tap into the healing power of journaling

Rare Research Finder

Meet our dedicated patient support team, who work daily to help families find and connect to the clinical research, and medical centers developing new treatments in rare disease.

Need help accessing new research?

“I cannot fail to thank you for the support you gave us in getting from Brazil to here in the United States. It was Know Rare that made the connection that brought us here and changed my daughter’s life for the better. Today, she is a child who can live outside the hospital, play, develop, and eat without the restrictions she had before.”


Renata, Mother and Caregiver of a child with organic acidemia

Insights From Our Blog

Read the journeys of people who live every day with a rare disease, and learn about the rare disease researchers working to create a better future.

RARE RESILIENCY

CHANGEMAKERS IN RARE

Latest Press

Read the latest on how we’re making a difference in rare disease




Get in Touch

Reach out now to let us know how we can help