Rare Leaders Featured Dr. David Fajgenbaum: How one doctor turned hope into action to treat his own rare disease Improving Access to Specialized Care For Myositis Changemakers in Rare: Becca Salky Offering Community Care and Emotional Care to Rare Disease Families Beneath the Surface: How dermatologist Prince Adotama, MD, is changing the way we think about rare disease and our skin Providing a Medical Home Changemaker in Rare: Becky Tilley Genetic Testing Explained: Dr. Joshua Owens is changing the way families think about genetics Changemaker in Rare: Anne-Marie McIntyre Changemaker in Rare: Pushpa Narayanaswami Changemaker in Rare: Jeremy E. Lankford, M.D. Changemaker in Rare: Mary Kay Koenig, M.D. Bob Coughlin: Boldly Chasing Cures Changemaker in Propionic and Methylmalonic Acidemia: Kimberly Chapman, MD, PhD Wendy White: Centering Patient Voices and Innovation in Rare Disease Care
