Let Know Rare help connect you to specialists for your Propionic or Methylmalonic Acidemia
Know Rare helped Tali, mother of Sarena, find rare disease specialists and may be able to help you too.
At Know Rare, our goal is to empower you to know your options and get access to the specialists creating a better future in rare disease.
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Our dedicated patient support team can connect you with world-class specialists in organic acidemia who can discuss potential new options for treatment with you
Get to Know Our Patient Support Team
Speak to real people who understand rare disease, and can help you get access to specialists
Laura Will
Nurse practitioner and mother to Alden, who has diffuse bilateral PMG.
Tali Wohlgelernter
Rare ally, advocate, and mother to Sarena, who was diagnosed with Dravet Syndrome at just 1 years old.