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Christine Kim
Before joining Know Rare, I worked in research coordination for qualitative studies and built a strong background in compliance and ethics within clinical trial management. Driven by a passion for advocating for patient rights, especially for those with rare diseases, I have successfully connected patients to clinical trials as a Patient Support and Recruitment Manager. My goal is to continue bridging patients with research opportunities that suit their needs, fostering clinical trials that are more inclusive, efficient, and patient-centered.
Andreya Fletcher
I’m formerly a nursing assistant who is personally connected to rare disease as my mom is diagnosed with Glanzmann Thrombasthenia which is a rare blood clotting disorder. Through learning from my mother’s experiences and supporting her in her journey, I understand how scary it can be to live with a rare disease. My personal experience combined with my professional experience as a nursing assistant has given me the skills and insight needed to help people affected by rare diseases.
After my son’s diagnosis, I had so many questions and didn’t know where to turn for answers. Know Rare provided incredible support by connecting us to the right specialists. Can’t thank them enough for giving us hope for the future!
Fran, Mom of Diego
Diagnosed with Propionic Acidemia
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