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Meet Your Rare Allies
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Laura, Mother of Alden
Laura Will is a nurse practitioner and mother to Alden who has diffuse bilateral PMG. Since Alden’s diagnosis, Laura has studied and been practicing mindfulness based therapies. She has also created an online support group for parents of medically fragile and/or disabled children.
Tali, Mother of Sarena
Tali's youngest daughter, Sarena, was diagnosed with Dravet Syndrome at just 1 year old. Since then, Tali has become an advocate for Dravet Syndrome Awareness, creating a chapter of the Dravet Syndrome Foundation in Israel where she lives. When she is not advocating for Sarena, she speaks to other rare parents worldwide who need help.
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