Organization Spotlight: Bliss Health
It’s no secret that it is difficult to get to a pain medicine specialist. There are just so many people in pain who cannot find relief, and are looking for help. Learn about Bliss Health, which provides access to pain management services through virtual consultations, through a dedicated team of medical professionals who specialize in the diagnosis, treatment, and ongoing management of various types of chronic and acute pain conditions.
Living With Myasthenia Gravis: 10 Things to Know
MG is a chronic condition with symptoms that come and go. It can be severe, but it’s also a treatable condition. Here are 10 key insights for MG patients and their support networks.
What is IVIg (Intravenous Immunoglobin) and How Does it Work?
Intravenous Immunoglobin, or IVIg, is a common procedure for a variety of autoimmune disorders, immune deficiencies, and inflammatory conditions. Learn about what the procedure accomplishes, how it’s administered, its side effects, and other useful information below.
Myasthenia Gravis: Questions and Answers
At Know Rare, we believe sharing our questions, experiences, and collective wisdom can help us all in navigating an uncertain course with our rare disease. For medical questions, it is always important to consult your doctor or specialists; however, sometimes it can help to have information to share with them. This is the first of a series of questions we received and the research we’ve found on the topic.
8 Common Triggers for Myasthenia Gravis Flare-Ups
Symptoms of myasthenia gravis (MG) often fluctuate. There may be times when you have only minor symptoms or no symptoms at all.
Tips for Managing a Rare Blistering Disease
If you have been diagnosed with pemphigus vulgaris, here are some lifestyle management tips you can do that can help.
In Case of Emergency: Unleash the Power in Your Pocket
Here are 4 tips to set up your smartphone so you’re prepared for a sudden trip to the ER.
Protect Yourself From the Sun if You Have Bullous Pemphigoid (BP)
The immune system of the skin is sensitive to the environment. Sunlight and air temperature normally affect the skin, but, if you have Bullous Pemphigoid (BP), which is an autoimmune disease, getting sun or too much heat can lead to blistering.
Can What You Eat Trigger Bullous Pemphigoid, a Rare Skin Condition?
Bullous pemphigoid (BP) is a rare skin condition that causes large, fluid-filled blisters. In reviewing evidence of food-related triggers, find out which foods may trigger BP.
A Rare Disease True Crime Story
Learn about a terrible story that occurred in 1989, when a woman named Patricia Stallings was wrongly convicted for the death of her son.
Effects of a 6-Month Yoga Program on Kidney Function and Quality of Life
Management of chronic kidney disease is complicated by many things, such as fluid retention, anemia, and effects on multiple organs in the body. In India, where treatments can be too expensive and beyond the reach of the majority of the population, many have relied upon yoga as an alternative therapy.
7 Tips For Finding a Clinical Trial for Your Rare Disease
7 tips for finding the right clinical trial for you and how Know Rare makes it easier to find a clinical study and talk to a researcher.
Plasmapheresis: Procedure Information & Potential Complications
Plasmapheresis is a procedure used to filter out antibodies that are mistakenly attacking the body’s own tissues. Here’s what to know about the ins and outs of the procedure.