AI Powered Rare Patient Network & Real World
Data Platform
Know Rare connects researchers & industry with our global patient network & real-world evidence to fuel better outcomes
FEATURED IN
About Our Network
Connecting the people, researchers and communities in rare disease
25,000+
Rare Disease Members
300+
Medical Centers Worldwide
50+
Patient Organizations
How We Help
Programs that utilize our patient network and real world data platform to power all stages of therapeutic development
Pre Clinical
Utilize our patient app and network to help with research, trial planning, and observational studies
Commercialization
Advanced patient reach and engagement for in market therapies through our app and patient network
Clinical Trials
Proven, targeted patient recruitment program that’s successfully helped recruit over 40 global clinical trials
How it Works
Our AI tech platforms show insights on our programs through easy to use dashboards, providing metrics & transparency at all times
Machine learning–powered platform identifies eligible patients for clinical and observational trials, optimizing researcher–participant connection and accelerating study enrollment
AI-enabled platform delivering strategic insights from ongoing patient engagement and real-world data—driving smarter decisions across early to late-stage therapeutic development
Proven Results
Success across multiple therapeutic areas that have helped fuel programs and research studies throughout the world
RARE NEUROLOGY
Myasthenia Gravis (gMG)
Amyotrophic Lateral Sclerosis (ALS)
Tubular Sclerosis Complex (TSC)
RARE CANCER
NUT Carcinoma
Rare Liposarcoma
Acute Myeloid Leukemia (AML)
RARE HEMATOLOGY
Sickle Cell Disease
Immune Thrombocytopenia (ITP)
Autoimmune Hemolytic Anemia (AIHA)
RARE AUTOIMMUNE
Myositis (IIM)
Multifocal Motor Neuropathy (MMN)
Systemic Lupus Erythematosus (SLE)
GENE THERAPY
Sanfilippo Syndrome (MPS-III)
X-linked Myotubular Myopathy (XLMTM)
75%
Average Rate for Randomization
RARE DERMATOLOGY
Bullous Pemphigoid (BP)
Pemphigus Vulgaris (PV)
25%
Average Network Recontact Rate
RARE KIDNEY & HEART
Focal Segmental-Glomerulosclerosis (FSGS)
Pulmonary Arterial Hypertension (PAH)
IgAN Kidney Disease
RARE METABOLICS
Prader Willi Syndrome (PWS)
Lysosomal Acid Lipase Deficiency (LALD)
Organic Acidemias (PA, MMA)
60%
Average Network Engagement Rate
Latest Press
Read the latest on how we’re making a difference in rare disease
Latest From Our Blog
Read the journeys of people who live every day with a rare disease, and learn about the rare disease researchers working to create a better future.
RARE RESILIENCY
CHANGEMAKERS IN RARE
Get in Touch
Reach out now to let us know how we can help